The mother of a boy with a disability said he believed he was failing due to the social care system.
Zack, 10, from Mansfield, has several life-threatening symptoms, including learning disabilities, sensory processing disorders, and bowel disorders.
He also has a centerline (a tube connected to a large vein near the heart), which provides him with important fluids and medications.
According to her mother, Tricy, Zack faces up to a year waiting for essential new equipment, despite the need for ongoing care.
“His bed isn’t right. He damaged the centerline three times,” she said.
Together For Shorter Lives, a charity that supports critically ill children and their families, said the number of calls from parents struggling to access ongoing medical care is increasing. “Insufficient funds” by the Association of Directors of Child Service.
Lawrence Jones, director of child and family services commissioning and resources for the Nottinghamshire County Council, said authorities were “sympathetic” to Zack’s situation.
“We strive to ensure that children and young people receive the support they need. We provide ongoing social care support for which the county council is responsible and respond to changing children’s needs. We regularly evaluate this for review, “he added.
A spokesperson for the NHS Nottingham and Nottinghamshire Clinical Commissioning Group (CCG) said: Complex conditions are met. “
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